We have a meeting set up for Wednesday, April 8th, at 6:30 my home, 10601 Twilight Dr, RSVP 314-849-8065 home, or 314-283-1227 cell.
Agenda:
Discuss potential fundraiser in September. Looking at the 19th as it's close to Megs birthday!
Considering a Bocce Tournament. We are not looking to have as large an event as the Valentine's Day Dance.
Spoke to Tom Savio at Milo's Tavern on the hill. They have two covered courts. We could invite 32 (4) person teams to play in a tournament on a Saturday. We could charge $100 to $200 per team to enter the tournament. As it is an establishment that sells food and drinks we would not be able to make money from the sale of either of those but could maybe add some raffle items, or sell 50/50 tickets - open to suggestions from the committee. Milo's will be of course happy to work with us.
Alternatives would be to try and set up a bocce tournament at a park, and this has been done before at Berra Park, and have an outdoor event. We then might be able to get food and drink donated and sell for profit. This would be a more extensive undertaking and we'd need lots more volunteers so that is something to consider.
Other News:
The video is up on the website now. We hope to improve on it as we were crunched for time the first time out.
Also, look for our 'Wish List' to be added for items we need donated like office equipment, or paper supplies and ideas for raising money. This could be simple things like cupcake sales at a girl scout meeting to including us on a company match program, etc. so look for that to come.
I am considering taking Megs to a Usher Syndrome Family Conference in Boston in June to be held at Harvard and sponsored by foundations like the coalition we have joined (find our link on www.usher-syndrome.org) and the FFB. Top researchers will be in attendance and it will give us a chance to meet other families affected by Usher Syndrome.
Okay, that's it for now. Hope to see you all soon and keep in touch. Don't be afraid to shout out ideas and opinions or additional ideas. Take care.
Terry
The Usher Syndrome Foundation
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